Grief Packages

The first order of business for our organization is the grief packages we send out to our loss families. This charity was born in the knowledge that the worst experience a parent can face is the death of their child and support and acknowledgment of that loss is important. Identical twins/multiples are a rare gift and a loss surrounding that gift can be especially difficult to experience. A package sent in love and understanding from another TTTS parent can build a connection and even a friendship that can last a lifetime. It is our business to help support bereaved parents and remember their babies.

Mother's Day and Holiday Cards

The loss of a child can bring very dark days. Some of the darkest ones are during holidays. To offer continued support to our grieving parents we send out cards to our package recipients twice a year. We make sure they know their children are being remembered and are in our thoughts during these often painful times.

TTTS Awareness and Support During Pregnancy

We have partnered with The Fetal Health Foundation to help offer support and medical information to any parent who contacts us. The Fetal Health Foundation is a leader in organizations that support families facing a fetal diagnosis. If you have any questions regarding options, choices or need support in making decisions regarding a medical diagnosis for your child(ren), they can help. Their medical advisory board  includes leading Maternal Fetal Medicine specialists with knowledge and experience in the most advanced treatments and cures for many fetal diagnoses, including Twin to Twin Transfusion Syndrome.

Please check out our new Awareness page to see what we are doing to help raise awareness of Twin to Twin Transfusion Syndrome. We invite you to join is in this work.

Partnerships

We are also partnered up with a number of closed groups on Facebook that offer peer support for any parent in any stage of their TTTS pregnancy.
TTTS Hope & Connections - Support for all TTTS families
TTTS Grief Support - Support for parents who have faced a loss of their child(ren) due to TTTS
TTTS Survivors with a Guardian Angel - Support for parents who have a combination of survivors and losses due to TTTS.
Identical Twins but Medically Different - Support for families of surviving ID twins with medical differences. While this group is not TTTS specific, often our surviving babies can experience medical differences due to the stresses they faced in utero and/or due to prematurity.

---